No More Breathing Tube

Today's plan was to get Addi off of sedation and get the breathing tube out. They took her breathing tube out about an hour ago and she looks BEAUTIFUL!! We went up to check on her and I snapped a quick picture. I didn't want to wake her up because she looks so peaceful!

The doctors did make her inactive on the transplant list today. They want to make sure by watching her interact with people that her brain function is fine. They said they want to see if she still can do appropriate things with all of the medicine and sedation out of her system. They don't seem to be concerned about it at all, especially with the CT looking like it did.

Addi is making progress every day and it's all because of God. We are still in awe of how far she has come and are so excited about her getting a new heart...the sooner the better!

Goodnight Monday

Well today has been a great day! The CT scan results came back good. At 7:15 this evening they turned off the breathing machine and she's been breathing on her own for a little over an hour. She is still intubated, just in case she starts to struggle. Hopefully the tube will come out tomorrow. I'm really wanting to hold her, and I think the tube has to be removed for me to be able to.

She looks great and has been awake quite a bit. She watches what the nurses are doing and I wouldn't dare leave the room with her awake. She watches to make sure you don't leave. We're looking forward to another good day tomorrow. Praying hard for a healthy heart while we wait for a new one!

Here's a picture of her breathing on her own while she's sleeping!

God is Good

Today has been an awesome day and it's only half way done. Addi had her CT scan today and we were told that "unofficially" it looks good. Because of this, she has become active on the transplant list once again, this time as a 1A. This is the highest priority on the list. So we can be getting a call anytime about a new heart for Addi. We were told that there is still no way of knowing when we'll get the call, but we pray it will be sooner than later!

Words can't describe the feelings and emotions that I'm having right now. Again...thank you so much for all of the prayers, sweet texts and emails, and everything else! We appreciate it more than you know.

Sunday Night

Today has been a good day! Addi has been awake off and on. She has been alert, looking around, and moving her arms and legs, and even moving her whole body at times. She recognizes our voices and I even asked her if she could open her eyes for Mommy and she did.

I'm in awe of what God is doing in our lives. It is truly a miracle that Addi is here and doing so well...and it is ALL because of Him. Please continue to pray for a strong heart, healthy lungs, and good brain function. We feel pretty good about her brain based on her activity, but we have nothing "official" yet.

Here is a picture of her with her eyes open.

The Plan for Sunday

Today the plan is to start weening Addi off of the sedation to get her to wake up. This is exciting news...I can't wait to see her awake. This process has to be done carefully. They have to make sure she doesn't get too excited or too upset and cause stress to her heart.

Hopefully I'll get some pictures today of her awake. Thanks again, for all of your thoughts and prayers.

Bow Time

I got to go up and fix Addi's hair a little today. I braided her hair so that it would be easier to keep under control. They also told me I could put a bow in her hair too!! She looks precious!

I can't say enough how blessed we are to have SO many people in our lives who love us. It is overwhelming each time I think about how many people are praying for our precious Addi (and I think about it often). Keep them coming! We love y'all.

God is Good

Addi is off of life support and has been for a few hours now. She is doing great! She looks a lot better. The only concern is that she has some fluid in her lungs, however, this is normal with what she went through on Thursday. The hopes is that the fluid will go away on its own. Now we take baby steps with getting her back to "normal".

We are by no means out of the woods, but this is HUGE progress! We have faith that God has good things planned for us. We just have to be patient. Please continue to pray that Addi's heart continues to function well on its own and that the fluid in her lungs goes away. God is good!!

Here are some pictures of her after the procedure. Her hair is, as she would say, "a mess". She's such a fighter!