Too Sweet for Words

Addi is doing great! She is bouncing off the walls and really enjoying being home. We took her out to the mall yesterday. It's the first time she's been "out" since we've been home. She loved it.

Si, Addi likes to spend time in her brother's room. She likes to sit in his chair and other times she likes to get some of his toys to play with. I went to see where she was at this morning, and she had his little Mickey Mouse lap table out from under his bed. All I could hear was "mouse", "roof roof", (for Pluto), and "quack" (for Donald). I had to get her coloring book and take everything out into the living room. It makes me happy to see her with Cade's things. I can't help but think that Cade may not have appreciated it if he were here (haha).

Don't mind the hair. She wanted it up and it slowly falls out because it is so fine...and she wouldn't let me fix it!

Check Up

Today Darrell took Addi back to TCH to have another X-ray and to do labs. The X-ray still looks good! Praise God!! They also took her off one dose of the diarrhetic. That was good news too. She'll go back next week for a clinic appointment to have her device checked, X-ray, labs, and blood pressure checked. Things are going really good and she is just so happy.

When she got home she wanted to watch Tangled. Here she is relaxing on the couch watching her movie.

Thank You

We are home and Addi is super excited! She is back to her normal self, bouncing off the walls. I started back to work today and my mom will be watching Addi until she can go back to Ashley's.

We just wanted to give a special thank you to our amazing parents. Darrell and I can't thank you enough for all you do for us. They both came up to the hospital every day and brought food, did our laundry, and brought whatever else we needed. They are so supportive and make everything easier for us. Addi had a great time walking around the floor with Mimi and MawMaw and taking stickers from PaCade and PawPaw. Thanks Mimi, PaCade, MawMaw, and PawPaw for loving us and being there for us!! We love you more than you know!

We Are Out of Here

Today Dr.. Denfield said that Addi's X-ray still looked good so we get to go home! I have to say that TCH does a wonderful job making you feel "at home". We had the most amazing nurses and PCAs.

We are leaving with four additional medications to add to the already one that she takes for her heart! We are so grateful that she is happy and back to where she needs to be...now we just have to make sure the fluid stays gone.

Thank you so much for all of your thoughts and prayers...they mean SO much!!

Here Addi is leaving the room and then her finding her sunglasses and putting them on all by herself.

Saturday Update

Dr. Denfield came by this morning and said her X-ray looks great! The plan today is to move her to all oral meds at her 5:00 med time. So it is looking pretty good!!

Addi is doing great herself and we're just going to be hanging out here today again. I'm sure we'll visit the library and take a couple laps around the floor. We are looking forward to coming home soon!

On a different note, earlier this morning Darrell got out some money to get a couple of drinks. Addi got her hands on some....starting early!!

Late Night Post

I just wanted to post a couple of pictures from tonight that make me smile. I'm in one of those emotional moods where I just think about how blessed I am to have Addi. I've said it a million times that we have a long road ahead of us, but I love that I have Addi TODAY! She brings so much joy and I love that as she gets older I can see Cade in her. There are things that she does that remind me of him.

Tonight when I was getting ready to bathe her I really thought about the scar down her chest and the scar across her belly. Those beautiful scars will forever be a reminder of how precious her life is! I am so thankful that God let us have her!!

Here is a picture I took of her before her bath. One shows her scars and how good they look (she still has some tape covering them at parts) and the other is showing how long her hair is now!

Friday Update Day 11

This morning's X-ray looked great! Dr. Denfield said if she was on all oral meds it would be a "going home X-ray". So that's what we are working towards. They are taking her off of one of the IV meds and are going to give her two doses orally. This is the first step of weening her off of the IV. Hopefully tomorrow her X-ray will look just as good and we can begin changing the last IV med to oral.

This morning the nurse had to switch her IV so that made her mad. Now she's perfectly fine. We're in the library and she's looking at books and playing with puzzles. This hospital is truly amazing. They have so many things here that cater to kids and it makes their stay that much easier to enjoy. They even have a little beauty shop where patients and their parents can get their hair cut. Darrell visited it this morning to get his hair "cleaned up". If you know Darrell he can only handle his hair getting so long (haha). He said there was no way he was going to let the lady use her clippers on him. "I'm way too picky about that" is what he said! No, not Darrell!!!

We're going to enjoy another day here at TCH. I'll update you again later!