Sunday Morning Update

Today Addi looks really good and is more alert. During the night her temperature got to 101.5. Everything else looks good. We may be spending another day in the CVICU so they can monitor it. When Darrell and I saw her first thing this morning it had gone down to a 100 without being on a cooling blanket. All of the cultures so far have come back negative, so the nurses still seem to think it might be inflammation from the surgery. Yesterday the surgeon said he wasn't worried about the fever.

We're about to head back to be with her...we needed to eat something first.

Too Cute

Here's a quick post about how cute I think little Miss Addi is. I packed a couple of bows for her to wear while she was here in the hospital. I've been waiting until she got comfortable before putting one on her.

I just went and fixed her hair and the nurse said I could put a bow in her hair if I wanted. Yeah!!

She's also been SO alert. I have a couple of videos on my phone of her and Cade that she LOVES to watch. I played one and she laughed! It made me smile!!

I'm also including a picture of her with her eyes open.

Update for Today

Things are going good today. Her fever has gone down and she seems to be a lot more comfortable. They have removed everything except one IV in her foot and the draining tube!

She slowly will come in and out of it. She has asked for "Momma" and I got to hold her. She's said a few words and even managed to get her fingers together to say "more" for juice.

We're hoping to move to the 15th floor tomorrow. We can't wait...that way we can be with her the entire time and not have to rotate in and out.

Another Day in CVICU

This morning Addi is doing good overall. Last night she spiked a fever so they put her on a cooling blanket to bring it down. They want to keep her in CVICU today to monitor her fever and the antibiotics they have her on. The nurse seems to think the fever is due to the inflammation from the surgery.

I think today may be a little difficult with her coming out of the anesthesia and being so uncomfortable.

Please continue to pray for strength and comfort for Addi and for our family! You are all amazing!

In Recovery

We just met with the surgeon and Addi is out of surgery. She did well! They implanted the device under the stomache muscle. He told us she would obviously be really sore. The breathing tube has already been removed. This is great because they originally told us it would be about 12 hours (at least) before they would take it out.

We get to see her in about hour! I'll post again with pictures and update after I see her.

So, the connection in here is not so great! I wrote the above a couple of hours ago. Since then I've been up to see Addi and she looks great! She's in quite a bit of pain and the nurses are keeping her medicated as much as they can. It's hard to watch and listen to her upset, but she's fine and that's all that matters. They also have her arms restrained so she can mess with anything that's attached to her...you know she just loves that!!

Here's a picture of her. Thank you so much for all of the prayers and support!! God is good!

Here We Go

Well they just took Addi back. It was emotional but so worth it! The nurses and doctors here are so amazing and they make the process easier to handle. I'll let you know when she's out if surgery. They said it could take about four hours!!

Surgery Moved to Friday

So, I have to say that Darrell definitely earned his "dad of the year" title today. I'm having to save my days for when it is time for transplant. Because of that, Darrell and I decided that I would go to appointments as needed. We thought today's appointment would be one of those. Boy were we wrong! Darrell and Addi arrived at TCH at 8:00 and didn't head home until 4:00. He ended up meeting with a lot more people than we had thought. After an echo, two rounds of blood (both of which took two times to get what they needed), and multiple meetings with doctors...everything looked good for her procedure. Darrell said she was so good and one of the nursed even gave her a baby Cinderella.

With all of that said, she will be having her surgery on Friday morning. The electrophysiologist had an appointment already scheduled for Thursday. We have to be at the hospital at 7:00. Darrell said the appointment made him feel really good about everything!

Here she is...beat, passed out on the couch in the waiting room waiting for the doctor!