Sunday, January 29, 2012

Sunday

Well Addi has done better today. She actually walked a couple of times today without crying. She even crawled up behind me...which she isn't supposed to do. She still is a little fussy which can make for long days. I'm pretty sure this is because she isn't quite herself yet. I can only imagine how she feels, she's been through a lot.

Tomorrow she has an appointment with Dr. Anderson our pediatrician. I guess he just wants to see her to make sure everything looks good. Tuesday she has an appointment with the surgeon to get a chest X-ray to make sure everything still looks as it should and to get her stitches out.

I'm going back to work tomorrow and am glad to get back into our normal routine. My mom will be keeping Addi for the next five weeks until she is completely healed and can go back to Ashley's.

Here she is tonight eating some fish sticks and enjoying Olivia on tv (one of my favorites!). She was in bed tonight at 6:30...such a tired little girl.

Saturday, January 28, 2012

Saturday

Soooo...today has gone better. She's walked a little more even though she still hates it.

Today is the last day she is on the antibiotic. I'm excited to see if this changes her attitude. She doesn't like it and I'm wondering if that has effected her eating a little.

Darrell and I took her for a walk and she loved it. It was beautiful outside today.

Friday, January 27, 2012

Progress

Today was a long, but productive day. Addi is at that age where she knows what she wants but can't communicate it. I spend about 30 minutes trying to figure out what she wants only to be unsuccessful. That's the part that made the day long.

On the other hand, she is definitely moving around more. She can sit up on her own to play. Today when we got her up to walk, she stood up from Darrell's knees on her own. She still can't get up from sitting on her own though. And...she still doesn't enjoy it. But, practice makes perfect.

My mom took her for a walk outside today and she LOVED it! Who doesn't like the fresh air.

She's still quite the princess and I think she's learned that if she cries, she gets what she wants! Oh well, she deserves it, she's been through so much!!

And...if we have to watch ONE more episode of the Mickey Mouse Club, we're going to go crazy. The things we do for our precious kids...shoot me(haha)! Here's a picture of her watching it for at least the 94th time. Isn't she cute!!

Wednesday, January 25, 2012

Time at Home

Today was our first day home and it was SO nice to be back! Since Addison had an incision down her chest we cannot pick her up under the arms (the normal way you lift a child) for six weeks. She cannot pull herself up onto anything either. Because of this, we had her sleep with us last night... Not fun. I was worried that she would try to pull herself up in her crib. Tonight we put her in her bed because she still isn't walking so i'm pretty sure we don't have to worry about her pulling herself up.

Today we worked with Addi on walking. She HATES it! She did really good today, but she cried the whole time. She's still a little wobbly and definitely needs support from one of us. She would walk to me, with Darrell's help, and when she made it she would lay her head on my shoulder....it was so tough for her. Anyways, we're very proud if her progress even though it is slow.

Tuesday, January 24, 2012

We Are Home

We were able to head home today! All of the doctor's said they thought she looked good. She is still pretty sore and she needs to start walking. She sat up quite a bit at the hospital so now we have to get her up and walking around. We met with the physical therapist and she gave us some things to do to help her.

Addi is glad to be home. She wanted a movie in, so now she is in her chair relaxing!

Darrell and I truly appreciate all of the continued thoughts and prayers. We are truly blessed to have so many people in our lives that love and care about us. Thanks to everyone who brought us food, sent cookies and flowers, and prayed. We still have a long road ahead of us, but we have faith that God has big plans for us and will be with us every step of the way!

What a Morning

Today started off busy at 6:30. Addi had an echo, chest X-ray, EKG, and a device check. She was pretty wore out. It looks like we may get to go home some time today. We're still waiting to see what the surgeon says. The cardiologist has given his okay.

Addi has been sitting a little more, but still hasn't stood up on her own. We're hoping to meet with the physical therapist before we leave to get her up more or to at least get some ideas of what to do when we get home!

I'll update again later!

Monday, January 23, 2012

All Cleaned Up

One more post for today...this afternoon one of the nurses came in and gave Addi a sponge bath (not as easy as you think). She did a great job. As I was holding her, Darrell dried her hair and she was falling asleep. She was so relaxed!! I have to say that Darrell's second day job should be a beautician. He dried her hair like Paul Mitchell. Then he got a HUGE tangled up knot in her hair all combed out. I'm sure he would really appreciate it if he knew I was writing this.

Here's a picture of her all nice and clean. They took the bandage off of her difibulator incision today!